Oahu CRPS Support Group offers in person, online, email, and phone support for people living with CRPS. From time to time our meetings are open to family members and loved ones. We are committed to learning from one another while respecting each other's privacy and individual treatment choices. We believe that telling our stories and hearing about other people's journeys helps us adjust to and develop coping skills for living with CRPS.
Our Facebook page gives members a place to communicate about meetings, chat about things that matter to us, and for new members to join.
You can reach us through our Facebook page or our Contact form for more information about meeting dates and times. Please include accurate contact information so we can get back to you promptly.
Complex Regional Pain Syndrome, previously known as Reflex Sympathetic Dystrophy, is a severe neuro-inflammatory pain disorder, usually after a trauma such as a broken bone, musculoskeletal injury, nerve damage, or surgery. Immobilization may be a risk factor for CRPS. Usually beginning in one extremity, symptoms do not follow nerve distribution patterns, but are regional. Many CRPS patients experience insomnia, fatigue, and depression.
CRPS is divided into Type 1 with no demonstrable nerve injury and Type 2 with nerve injury. Treatment is the same for both. Research conducted by Anne Oaklander, MD, PhD has shown that small fiber pathology exists even in Type 1. A concept which has fallen out of favor is the Stages of CRPS. Symptoms may wax and wane. Acute and chronic CRPS symptoms may vary in presentation.
Many people diagnosed with CRPS recover within the first year. However some people experience chronic, unrelenting severe pain and disability. Over time, symptoms can spread beyond the initially affected area. Long standing CPRS may result in systemic complications.
Damage to or malfunction of the peripheral and central nervous system is believed to be at the root of the condition. Changes in blood flow and high levels of immune system inflammatory agents contribute to the symptoms.
It is important to begin treatment as soon as possible, while only the peripheral nervous system is affected and before there are changes to the central nervous system (brain and spinal cord).
It's important to make sure your physician is qualified to diagnose and/or treat CRPS. It's estimated that the average patient see more than four doctors before they receive a proper diagnosis.
For information about treatment options, research, and more, please visit our "Where can I get more information" section.
Diagnosis and Treatment
Surgery with CRPS
Tips for Living With Pain
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